As an organization dedicated to optimizing patient outcomes from treatments for sarcoidosis, FSR is always looking for ways to help ensure that the patient voice is represented in research and projects relating to sarcoidosis. As part of these efforts, we are sharing the below message from a group that hopes to better understand sarcoidosis patients’ priorities:

A sarcoidosis treatment guideline is being developed by a European Respiratory Society (ERS) working group and will be used by doctors and other healthcare professionals to help them treat people with sarcoidosis in the best way possible.

While clinicians and researchers are working to identify clinical data appropriate for the treatment guidelines, we are reaching out to capture the patient’s voice. To help with this, we want to find out the outcomes that are most important to patients to make sure that the recommendations in the guideline take into account aspects of treatment which matter to patients.

If you are an individual who has been affected by sarcoidosis, complete the survey to ensure your voice is heard.

All responses are anonymous and will feed into the activities of the working group to ensure that patient views are considered.

The survey will take about 5 minutes to complete and will be open until February 23, 2018.

Thank you for your help.

About ERS

ERS (European Respiratory Society) is an international organisation that brings together physicians, healthcare professionals, scientists and other experts working in respiratory medicine. They aim to promote lung health and to drive standards for respiratory medicine globally. Learn more about ERS at their website.

 

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