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FSR Global Virtual Sarcoidosis Summit

Find Your Community, Find Your Life

For Patients, Loved Ones, and Supporters

Registration:

Early Bird Patient/Support Registration (Open until Sept. 30th): $60

Patient/Support Registration (Oct. 1st-30th): $75

Industry Registration: Please contact Angela O'Malley for industry registration.

Click here to apply for a summit scholarship.

Friday, November 3, 2023 - Sunday, November 5, 2023 

Friday; 4:00 pm – 5:30 pm CT (5:00 pm - 6:30 pm ET).

Saturday & Sunday; 9:00 am - 5:00 pm CT (10:00 am - 6:00 pm ET)

The sarcoidosis journey is an uncertain one and, at times, can feel lonely and isolating. However, it is possible to find a community of people who relate and understand what you’re going through. Join us for this year's FSR Global Sarcoidosis Summit (For Patients, Loved Ones, and Supporters) and begin building or adding to your community.

This event will provide the opportunity to learn and have your questions directly answered by world renowned experts. You will learn how to build stronger relationships with your providers and care teams as you grow your medical support community.

Whether you are living with sarcoidosis or supporting someone who is, this summit is for you. You will also have opportunities to meet, share stories, and learn from others who are on a similar journey through our extensive virtual community discussion forums, networking events, and chat tools. You will make lasting relationships with other sarcoidosis warriors and loved ones, such as yourself, and create a village of friends who truly understand what you are going through and who can provide advice and support for you throughout your journey.

"I have never gotten so much valuable information about this disease."

- 2022 Summit Attendee

We aim to support you along your journey by providing you an opportunity to “Find your community. Find your Life.”

This year’s program includes enhanced  education and networking opportunities including:

Dynamic platform,  personalized sessions, and AI generated recommendations

If you have joined us for past virtual summits, you will be pleased to know that we will continue to use the same user-friendly platform designed to promote interaction, engagement, and networking.

If this is your first time joining the virtual summit, rest assured that the platform will make it easy for you to create connections, find relevant sessions, and build your community.

Duration in the platform

We want everyone to feel comfortable and be ready to make the most of this event, so the virtual “doors” will open four-days before the start of the Summit. Early access allows you to check out sessions in advance, get familiar with the platform, network with other attendees, and visit exhibit booths to obtain vital information from FSR’s sponsors and partners.

 

Returning 101 Track Topics

Whether you’re new to sarcoidosis or an experienced sarcoidosis warrior or loved one, we’re bringing back our 101 Track topics which are meant for those new to sarcoidosis while providing different topic and discussion opportunities for those who do not wish to participate in the 101 Track topics. Whether this is your first time learning about sarcoidosis or you have attended educational events before, you will find important information and insights in these sarcoidosis expert-led sessions.

Innovative sessions for patients, loved ones, and supporters

Invite your friends and family. Having a community of people with different perspectives allows all of us to learn from each other and lean on each other during the sarcoidosis journey.  This event is for anyone who is impacted by sarcoidosis, whether you are living with the disease or love and support someone who is.  All are welcome. Together we can improve the lives for all impacted by sarcoidosis.

FSR Global Sarcoidosis Summit Pre-Event: An Evening to Find Hope and Inspiration through Music featuring Bernie Williams

This interactive kickoff event will be fun way to get this event started. Do you love music? Are you looking for creative outlets? Stay tuned for more information to be released in the upcoming months

Unique and Exciting Plenary Sessions

This year's plenary sessions offer fresh, engaging and exciting content:

 

  • New and emerging therapies with guest speakers from Pharmaceutical Partners
  • Overcoming Isolation with Chronic Illness - The Power of your Community

-Emotional Wellness: Tolls for coping with stress and anxiety

-Managing chronic illness and relationships

  • Ask The Experts: 50 Min Q&A with Sarcoidosis Experts
  • Patient Panel Discussion: 50 Min interactive discussion on the importance of a community along your journey
  • Panel Discussion: Environmental Factors and Exposure
  • Community Meal & Happy Hour

-Overview: Anti-Inflammatory Diet

-Meal Demonstration: Create a meal and break bread as a community

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Stimulating Breakout Sessions

Along with our 101 track topics we’re introducing new and innovative though provoking sessions aimed at delivering different ideologies and perspectives.

 

  • Find Your Physician Community

- Lost in Translation: A discussion about communicating with your healthcare team

  • Find Your First Responder Community (Military Veterans / Firefighters / Police Officers)

- Environmental Exposures

- Military Veterans/Pact Act

  • Alternative Holistic Therapies

- Fatigue & Pain Management

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Engaging Networking and Discussion Sessions

We are excited to offer many opportunities for attendee engagement!

  • Genetics and Sarcoidosis
  • Finding the right treatment to fit your life

- Prednisone and Methotrexate

- Insurance Issues and Barriers: FSR Legislative Activity

  • Ability to connect one-on-one with other attendees and exhibitors
  • In-system video chatting, and group chat availability

- Open “Coffee Break” area available to drop in throughout the event, staffed by FSR Patient Advocates

  • Abundant chat rooms based on topics of interest
  • Tailored connections based on your region, and interest in sarcoidosis
Sarcoidosis Awareness (1)

The Schedule

Scholarships

Thanks to our amazing donors, we have a limited number of scholarships for patients and their loved ones. Scholarships are meant to reduce the burden of registration costs for those in our community who would not otherwise be able to attend. 

Feedback from past Summits

In 18 years, this is the first time I have received such comprehensive information.

Thank you.
Excellent summit!

In over 20 years of having sarcoidosis, this is the most information I have received on my diagnosis.

Excellent summit. I wish I could have experienced this years ago. 

What a very informative Education Summit. 

Thank You to Our Summit Sponsors

Platinum Sponsors

Bronze Sponsors

Interactive Community Discussion Sponsor

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