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Be an Advocate in Your Hometown!

Be an Advocate in Your Hometown!

Throughout the month of August, legislators will be back in their home districts during Congress’ Summer Recess. This allows advocates a chance to meet with their representatives without having to travel to Capitol Hill. For those affected by rare diseases...
What is a Sarcoidosis Disease Model?

What is a Sarcoidosis Disease Model?

Back in 2016, FSR began our Sarcoidosis Disease Model program with a Request For Applications for research projects that looked for a viable disease model for sarcoidosis. In the years since, we’ve awarded $1,050,000 towards multiple promising projects through a...
Coping with the Setbacks in Sarcoidosis

Coping with the Setbacks in Sarcoidosis

If you have been with living with sarcoidosis for any amount of time, you know that this nasty disease will often kick you in the teeth and leave you frustrated just about every day. As a fellow sarcoidosis sufferer for about the last five years, I know that I wrestle...
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