Category: News
NORD offers financial assistance to rare community for COVID-19
FSR is a proud member of NORD, the National Organization for Rare Disorders. On April 15th, NORD announced the creation of a program to provide financial assistance for members of the rare disease community who have been impacted by COVID-19. Read the release below or...
WEBINAR: A Rare Response: Addressing the COVID-19 Pandemic
FSR is a proud member of the National Organization for Rare Disorders, or NORD. Our friends at NORD are hosting an informational webinar about rare disease patients and the COVID-19 pandemic.A Rare Response: Addressing the Covid 19 PandemicTuesday, March 31, 20202:00...
RESCHEDULED: Chicago Patient Summit
FSR is announcing the postponement and rescheduling of our Chicago Patient Summit that was initially scheduled for April 3-5, 2020 in Chicago, IL. The event has been rescheduled for August 30 – September 1, 2020.
Online Support at Your Fingertips: Inspire Introduces an App!
Since sarcoidosis is a rare disease, it can be hard for patients to find a support system who understands what they are going through. For that reason, FSR started a Stop Sarcoidosis support group on Inspire, a health and wellness-focused online community. Patients...
5 Ways to Celebrate #GivingTuesday with FSR
Giving Tuesday is just around the corner! For those who don’t know, this event happens annually on the Tuesday after Thanksgiving. Giving Tuesday is essentially the nonprofit world’s version of “Black Friday” or “Small Business...
FDA Grants Breakthrough Status to Ofev
Exciting news for the sarcoidosis community!On October 10, 2019, Boehringer Ingelheim announced that the US Food and Drug Administration (FDA) granted Breakthrough Therapy Designation to Ofev (nintedanib), which is a new drug that is believed to slow the progression...
The seasons are changing, and so are things at FSR!
Fall is officially here, and with the change in seasons comes some exciting new changes at FSR as well! FSR is thrilled to welcome Lisa Dietlin as our Interim Executive Director. Lisa has been previously involved with FSR in numerous capacities, including back in our...
Support FSR through the CFC!
FSR is a part of the world’s biggest workplace charity campaign, the Combined Federal Campaign (CFC). The CFC enables government workers to support FSR through payroll deductions.
9/11 and Sarcoidosis
FSR thanks all who helped serve on 9/11 and sends out a reminder to people with 9/11 induced sarcoidosis, we are here supporting you.