Stay up-to-date on the Foundation for Sarcoidosis (FSR)'s latest activities and learn about the ways that FSR is driving progress and accelerating research towards a cure.
FSR Reports
FSR has undertaken a comprehensive process to develop a new Research Agenda that will guide its funding priorities and strategic direction. This initiative comes at a critical time, as sarcoidosis affects approximately 1.2 million people worldwide, and approximately 175,000-200,000 in the United States. Sarcoidosis was first discovered over 150 years ago and yet little progress has been made toward a significant breakthrough in the scientific understanding of the disease and the therapeutic options.
To address this concern, FSR has endeavored to create a robust Research Agenda aimed at addressing gaps in sarcoidosis research. This Research Agenda represents a strategic and measurable approach toward the achievement of our mission to accelerate progress toward improved treatments and a possible cure for sarcoidosis.
On October 28, 2024, the Foundation for Sarcoidosis Research hosted the Externally-Led Patient Focused Drug Development (EL-PFDD) Meeting—an interactive, virtual event where patients and caregivers shared their experiences, unmet needs, and treatment priorities.
The resulting 50-page Voice of the Patient Report captures these insights, reflecting the real-world impact of sarcoidosis and guiding future research and therapy development. This report amplifies the voices of patients and caregivers, providing valuable perspective for healthcare providers, researchers, and drug developers to ensure that patient needs remain at the center of progress.
FSR is excited to announce the release of The FSR-SARC Patient Registry Report (FSR Registry Report), “Living with Sarcoidosis – Insights from the FSR-SARC Patient Registry (FSR Registry)."
This global, patient-reported outcomes program incorporates dates from 2015-2025. For a decade, the FSR Registry has gathered crucial information from individuals living with sarcoidosis around the world. This online patient registry is helping researchers uncover patterns in the disease and identify ways to improve care and quality of life.
Posters and Abstracts
Partner Joint Publications
Toolkits
White Papers
Annual Updates
Press Releases
FSR Blog
Take Action: AHCA Will Remove Key Protections for Pre-Existing Conditions
The Foundation for Sarcoidosis Research is sharing this urgent call to action from the National Organization for Rare Disorders (NORD): WE NEED YOU to call, email,Learn More
Join Team KISS This Summer!
Summer officially starts June 20th! It’s time for backyard barbecues, time with friends and family, and some fun in the sun. There’s no betterLearn More
Do You Know About Your Health Data?
Did you know, you have access to all of your health data online? 41% of Americans have never taken advantage of their ability to seeLearn More
CLEAR Trial: Phase II Investigation of Antimycobacterial Therapy of Progressive, Pulmonary Sarcoidosis
The main purpose of this study is to investigate the efficacy and safety of oral antimycobacterial therapy in patients with confirmed progressive pulmonary sarcoidosis.Learn More
FSR Funds Six ATS PAR Travel Scholarships
The Foundation for Sarcoidosis Research is committed to fostering the growth of medical professionals who are interested in research and clinical work related toLearn More
Quick links
Check out these recent updates!