Select Page

FSR Updates

Stay up-to-date on FSR’s latest activities and learn about the ways that FSR is driving progress and accelerating research towards a cure.

FSR launched the Ignore No More: ACTe Now! Campaign (Advance Clinical Trials for Equity in Sarcoidosis) to address the underrepresentation of Black Americans in clinical trials. As part of the campaign, FSR conducted the first of its kind, IRB-approved national patient survey for Black Americans to better understand the challenges and experiences Black Americans with sarcoidosis face as it pertains to clinical trials and their disease journeys. FSR also conducted a Key Opinion Leaders Thought Workshop (KOL) and Patient Focus Group to explore the findings in greater depth and to identify recommendations for how to improve clinical trial access and overall care of Black sarcoidosis patients.

Some recommendations that emerged include building a blueprint for clinical trial design that increases access and supports diversity, clinical trial navigation and support specifically targeted for Black patients, and educational toolkits to better educate patients and physicians about trial opportunities and engagement. Though this campaign was specific to Black Americans with sarcoidosis the learnings are relevant to improving access to clinical trials for all Black Americans.


White Papers

Annual Updates

Press Releases

FSR Blog

Patient of the Week- Andrea Acton!

August 9, 2013

In our second week of the Patient of the Month we honor Andrea Acton! The work she has done on behalf of sarcodiosis hasLearn More

Patient of the Week!- Lona King

August 2, 2013

This August we are featuring Patients of the Month! Each Friday, we will be highlighting a new patient. Every patient is different, and FSRLearn More

young female doctor in front of group of doctors

Abstract Scholarship Awardee- Caroline Broos

June 6, 2013

FSR is pleased to support the research of Dr. Caroline Broos by awarding her the American Thoracic Society Abstract Scholarship during the ATS ConferenceLearn More

microphones at a panel

FREE Patient-Doctor Forum May 18

April 30, 2013

We know you want answers — come meet the experts who have them!! At this Meet the Experts session, you’ll have an opportunity toLearn More

person holding paperwork and a pen

$500,000 Donation To FSR

March 11, 2013

$500,000 Donation to FSR ensures research investment and establishes The Marvin And Harlene Wool Giving Society! We are pleased announce that FSR was recently grantedLearn More

blurred view of a conference

K.I.S.S. Chicago 2013 Rocks the Casbah!

February 28, 2013

Great Party – Great Cause! On Saturday, February 9, 2013, The Foundation for Sarcoidosis Research (FSR) hosted K.I.S.S. (Kick in to Stop Sarcoidosis) atLearn More

FSR to host K.I.S.S. 2013!

January 29, 2013

FOR IMMEDIATE RELEASE Contact: The Foundation for Sarcoidosis Research Hosts K.I.S.S. Chicago 2013 CHICAGO (November 6, 2012) — The Foundation for Sarcoidosis ResearchLearn More

young man looking out window worried

Excessive daytime sleepiness and obstructive sleep apnea in patients with sarcoidosis

December 1, 2012

Patterson KC, Huang F, Oldham J, Bhardwaj N, Hogarth DK, Mokhlesi B. Abstract ABSTRACT BACKGROUND: Systemic symptoms are common in sarcoidosis and are associatedLearn More

Translate »