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FSR Updates

Stay up-to-date on FSR’s latest activities and learn about the ways that FSR is driving progress and accelerating research towards a cure.

FSR launched the Ignore No More: ACTe Now! Campaign (Advance Clinical Trials for Equity in Sarcoidosis) to address the underrepresentation of Black Americans in clinical trials. As part of the campaign, FSR conducted the first of its kind, IRB-approved national patient survey for Black Americans to better understand the challenges and experiences Black Americans with sarcoidosis face as it pertains to clinical trials and their disease journeys. FSR also conducted a Key Opinion Leaders Thought Workshop (KOL) and Patient Focus Group to explore the findings in greater depth and to identify recommendations for how to improve clinical trial access and overall care of Black sarcoidosis patients.

Some recommendations that emerged include building a blueprint for clinical trial design that increases access and supports diversity, clinical trial navigation and support specifically targeted for Black patients, and educational toolkits to better educate patients and physicians about trial opportunities and engagement. Though this campaign was specific to Black Americans with sarcoidosis the learnings are relevant to improving access to clinical trials for all Black Americans.

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White Papers

Annual Updates

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FSR Blog

KISS 5K Photos & Results

May 10, 2016
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FREE Forum for Sarcoidosis Patients in San Francisco

April 30, 2016

The Foundation for Sarcoidosis Research and the ATS Public Advisory Roundtable hosted a free forum called “Meet the Experts.” The forum was designed for patientsLearn More

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Chicago Patient Conference – Sunday, May 1, 2016

April 27, 2016

Please join the Foundation for Sarcoidosis Research and internationally recognized faculty in Chicago, IL to learn about sarcoidosis research, treatment options, and clinical care with sarcoidosisLearn More

Join us in Charleston, WV!

April 19, 2016

Please join the Foundation for Sarcoidosis Research and internationally recognized faculty in Charleston, WV to gain valuable insight into disease-specific topics.  Patients and family membersLearn More

VIDEO: Treatment and Fatigue in Sarcoidosis Webinar

April 18, 2016

Please join the Foundation for Sarcoidosis Research and Dr. Robert Baughman for a webinar on Wednesday, April 20, 2016 at 9:00 AM ET entitled, Treatment andLearn More

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One Step at a Time

April 16, 2016

It isn’t easy staying fit when you have a chronic illness. Our conditions can be an incubator for excuses. We all have bad days,Learn More

More than a walk – it’s a movement!

March 17, 2016

Walkers are assembling in towns nationwide to raise funds and awareness for sarcoidosis research! What will YOU be doing on April 30th?  If you can’t make itLearn More

Accelerate Research for Sarcoidosis at K.I.S.S. 5K in Chicago!

March 16, 2016

Kick In to Stop Sarcoidosis at the Foundation for Sarcoidosis Research’s 3rd Annual 5K in Chicago, IL!  Saturday, April 30, 2016 at 10:30am GroveLearn More

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FSR attending the 8th International WASOG Conference

March 7, 2016

Please join the Foundation for Sarcoidosis Research (FSR) and the World Association of Sarcoidosis and Other Granulomatous Disorders (WASOG) for the 8th International WASOG Conference on DiffuseLearn More

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FSR to Host New Orleans Sarcoidosis Conference!

February 12, 2016

The Foundation for Sarcoidosis Research will host a conference for patients on February 27, 2016 in New Orleans, Louisiana. Please join FSR, Tulane University,Learn More

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