The National Organization for Rare Disorders is starting a patient-driven campaign to highlight the significant impact that the Affordable Care Act has had on patients with rare and chronic diseases. Some noticeable changes for these patients was prohibiting...
FSR’s partner Inspire, which serves as the platform for our online support group- “Stop Sarcoidosis”- has hit 1 million members! Inspire provides a space for online support communities that allow patients to connect with others like them, regardless of geography....
As a foundation, our goals start with ensuring that patients are getting accurate educational information and end with our ultimate mission: stop sarcoidosis. Some of our work is highly visible, like our physician registry, patient conferences, and our online support...
We are excited to announce that Ginger Spitzer, Executive Director for the Foundation for Sarcoidosis Research, will present a session at the 44th Annual NBNA Institute and Conference. FSR recognizes sarcoidosis to be a debilitating disease for which there is limited...
Please join the Foundation for Sarcoidosis Research (FSR) and the World Association of Sarcoidosis and Other Granulomatous Disorders (WASOG) for the 8th International WASOG Conference on Diffuse Parenchymal Lung Diseases, which will be held on June 2–4, 2016 in...
The Investigator Databank is a global collaboration between Janssen, Lilly, Merck, Pfizer and Novartis (with more companies to come) to share investigator information that each company has on file with one another. Investigator Databank aims to reduce administrative...
FSR is proud to announce our membership acceptance into the elite group of medical research foundations represented by Faster Cures TRAIN. These selected TRAIN organizations, including FSR, are recognized for being collaborative, mission-driven, results-oriented, and...
Current Progress in Sarcoidosis Research Attend the webinar Feb 10th at 2pm EST We have partnered with the American Thoracic Society for their Sarcoidosis Lung Week celebration at ATS. Join our webinar to hear Dr. Wonder Drake talk about the Current Progress in...
