The SCOUT study needs your help to agree on a set of core outcomes that should be measured in all studies for pulmonary sarcoidosis.
The Foundation of Sarcoidosis Research has commissioned a research study to find out the most important outcomes, the core outcomes, of treatment for pulmonary sarcoidosis.
What’s a core outcome?
When new treatments are developed, and tested, researchers look at the effect those new treatments have on patients by measuring an “outcome”. At the moment, different studies often measure different outcomes which makes it more difficult to compare and combine the results. We can’t measure everything all the time, and some things may just be measured in some studies, but what the SCOUT study wants to find out is what outcomes are so important that they should always be measured in research for pulmonary sarcoidosis.
You can find out more about core outcomes in this short (3 minute) video:
How you can help.
We are inviting four groups of people to take part in the study:
- People with pulmonary sarcoidosis.
- Health professionals (including primary care, secondary care and allied health professionals).
- Researchers working in the field of pulmonary sarcoidosis.
- Industry representatives
If you are interested in taking part please visit: https://delphimanager.liv.ac.uk/SCOUT/Delphi