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Take ACTion Now!

There’s a role for everyone in advancing clinical trials for equity in sarcoidosis. You can start with the steps below. 

Support the Ignore No More: ACTe Now! Campaign in the following ways:  

  1. Join FSR’s Patient Registry to provide information on your personal experiences with sarcoidosis. This opportunity is open to all sarcoidosis patients and care partners. It’s a great way to get involved in research to improve care and treatment for sarcoidosis patients.  
  2. Download and share the Ignore No More: ACTe Now! infographicwith your personal and professional networks and on social media.  
  3. Book a speaker. Have a support group, organization meeting, or healthcare institution event, where you’d like our Committee Members to speak? Contact us!  
  4. Follow FSR on social media to stay connected and share important information (@stopsarcoidosis on Instagram, Facebook, Twitter, and LinkedIn). 
  5. Learn about current clinical trials opportunities for sarcoidosis patients. Search this directory to find a trial or research opportunity that works for you. Sign up to receive notification when sarcoidosis clinical trials become available. Learn more. 
  6. Raise Awareness for Sarcoidosis. Learn more. 
  7. Join the FSR community to receive our monthly newsletter and stay up to date on research, programs and more! 
  8. Become a volunteer advocate, local advocate, peer mentor advocate or patient navigator. FSR has a vibrant patient advocacy program. Through this program you can find the right volunteer opportunity for your schedule. Learn more.  
  9. Volunteer as a support group or community outreach leader in support of an FSR Global Sarcoidosis Clinic Alliance Member. Learn more here.

 

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