Our partners at NORD recently launched a new initiative called RareInsights: RareInsights™ is a NORD® initiative to help expand public knowledge of rare diseases and translate that knowledge into real-world solutions for patients and families. Through this initiative,...
FSR is consistently working to ensure that researchers and physicians have plentiful opportunity to get involved in the world of sarcoidosis research. One such way is our recent $1M investment in our new Clinical and Research Fellowship Program. We also recently give...
One of FSR’s Awareness Campaign partners, the American Lung Association is hosting a webinar featuring FSR Scientific Advisory Board member Lisa Maier, MD MSPH from National Jewish Health, as well as sarcoidosis patient Tia Gray. This presentation will give a...
It’s Rare Disease Day! Each year, Rare Disease Day falls on the last day of February. This is a day for the rare disease community to come together and celebrate what we have in common as well as what makes us all, well….rare! We hope to raise awareness...
Several of FSR’s Patient Ambassadors have been making waves to raise awareness of sarcoidosis with their local legislators. While many ambassadors and other volunteers work towards obtaining state proclamations recognizing April as Sarcoidosis Awareness Month in...
Our online support community has continued to grow over the past few years, reaching 40,000 online members this month! The Stop Sarcoidosis support community is hosted on the platform Inspire, which provides a space for online support communities that allow patients...
FSR Executive Director Ginger Spitzer attended the 2017 ATS Public Advisory Roundtable Planning Meeting on Nov 17-18 in Miami. Our membership in PAR allows FSR to continue our work toward advocating for patients and ensuring the patient perspective into clinical and...
Ginger Spitzer, the Executive Director for the Foundation for Sarcoidosis Research, will be a panelist at this year’s Drug Information Association’s Annual Conference. The DIA 2017 Annual Meeting is the largest, longest-running event in the life sciences...
As we announced earlier this month, Penn Medicine launched the first ever Apple Researchkit app for sarcoidosis patients. Spearheaded by Dr. Misha Rosenbach, a member of FSR’s Scientific Advisory Board, the app aims to not only provide patients across the country (and...
